Lydia was born in December 2018, and started having seizures soon after birth. After 3 weeks in the hospital, we discovered a random mutation in a critical gene that controls her brain function. She is likely to be severely physically disabled, and mentally not progress beyond a few months of age.
Lydia is not alone. There are millions affected by one-off genetic mutations. People call them rare, and move on, but these are not rare. This a classic long-tail problem — each mutation can occur in one of 6 billion characters of code in your DNA. There are emerging technologies that are extremely effective at silencing these mutations at the source, but we need a platform driven approach to personalize a drug for each patient.
We have set up Lydian Accelerator to help accelerate this platform, for Lydia and others. Read more about our approach.
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If you would like to support our mission, please use the link below. All donations are tax deductible.
Our first day home after 3 weeks at the hospital
ABOUT US
Rohan Seth and Jen Fernquist Seth grew up in India and Canada respectively. We both studied Computer Science and met while working in technology in San Francisco. Lydia is our first child. She has beautiful chubby cheeks, long eyelashes and the sweetest smile. Her mutation happened spontaneously in her.
Our journey has not been easy, but we are scientific, entrepreneurial, hard working and ambitious. We have translated foreign medical records to find a diagnosis, self compounded drugs at home, dived deep into the research ourselves and put together a phenomenal team of scientists to rapidly execute on it.
We founded a registered 501(c)(3) non-profit Lydian Accelerator and our mission is to help bring an end to these genetic diseases.
Lydian Accelerator is a registered 501(c)(3) non-profit (83-4634227). Donations are tax deductible.